Self-Advocacy Project

Pennsylvania Developmental Disabilities Council In Collaboration with Speaking for Ourselves

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The Situation

The Pennsylvania Developmental Disabilities Council established a goal in its 2002-2004 State Plan to conduct a statewide survey to learn about the state of self-advocacy in the Commonwealth. The project was funded with the purpose of gathering information and making recommendations to help the Developmental Disabilities Council improve the support for self-advocacy efforts in Pennsylvania.

Speaking for Ourselves – Pennsylvania’s self-advocacy organization – and CQL were selected to form a partnership to complete the project.

What CQL Did

CQL and Speaking for Ourselves collaborated over a two-year period on this project. Together, we:

  • Hosted a statewide meeting of stakeholder organizations representing varied aspects of self-advocacy
  • Developed a survey process that focused on connections to others, empowerment and control, and support for self-advocacy efforts
  • Trained self-advocates in using the survey instrument and conducting interviews
  • Conducted interviews with self-advocates across the state
  • Delivered a final report with data analysis and recommendations to the Developmental Disabilities Council

Based upon the findings of the research report, the Developmental Disabilities Council set a priority in its next funding cycle to provide technical assistance to support self-advocacy efforts in Pennsylvania and to identify and encourage support of self advocates in Pennsylvania and the expansion and development of their efforts statewide.